Deals and discounts in Tablets you dont want to miss. Heera, who treated Mohammed for 12 years said that the primordial dwarf suffered from chronic obstructive airway disease, which Mohammed made worse with heavy smoking. There's also the danger of scoliosis, a curvature of the spine and heart issues. The condition has baffled doctors for decades, and six years ago Monica provided a sample of her DNA to doctors who were working on a groundbreaking study of Saul-Wilson Syndrome at the National Institute of Health. Hannah does have a dream to have her own family to have a husband to have a child. There are more than 200 types of primordial or proportionate dwarfism. Typically, people with primordial dwarfism are born with very low birth weights. Registered in England & Wales | 01676637 |. Brad Jordan died on February 21, 2017, at the age of 25. It was a complete surprise. Outside of Jesus, Landen loved his momma, Luke Johnson told Channel 9. Her confidence has improved a lot over the years. Nick has done everything more than the doctors imagined, says Shelly, who reports on Nicks life for their nearly 17,000 subscribers on YouTube. Her brother Brad was born weighing 2 pounds, 4 ounces, and measured 13.5 inches long. Save up to 50% on Women's Accessories when you shop now. Find the best deals on Gear from your favorite brands. The baby's head was tiny and she was missing part of her brain. But teachers and strangers often "sheltered" them and treated them like children, according to their mother. He picks up echoes as they bounce off things around him. She said: Ive been dancing since I was two-years-old, and took gymnastics at three. WebShe's one of only 100 primordial dwarves in the world. Turn on desktop notifications for breaking stories about interest? It is rare for individuals affected by primordial dwarfism to live past the age of 30. His mother's positive attitude instilled a sense that he could do anything he wanted as she encouraged him to explore the world through touch, smell and sound. It is known that PD is caused by inheriting a mutant gene from each parent. Click to share on Facebook (Opens in new window), Click to share on Twitter (Opens in new window), Click to share on Pinterest (Opens in new window). "Their older sister helped me when they were little to treat them the same way she got treated," said Christy Jordan. Luke opened up to Channel 9 about Landen's strong faith, and his upbeat attitude, despite his uphill battle. More specifically, primordial dwarfism is a diagnostic category including specific types of profoundly proportionate dwarfism, in which individuals are extremely small for their age, beginning from their conception.Most Doctors predict that Kenadie will never be taller than 3 feet. Find the best deals on Women's Handbags & Wallets from your favorite brands. Treatments for most dwarfism-related conditions don't increase stature but may lessen associated physical complications. Find the best deals on Fragrance from your favorite brands. WebPrimordial dwarfism is a rare form of dwarfism that results in a smaller body size in all stages of life beginning from before birth. WebKenadie has an extremely rare form of dwarfism classified as primordial dwarfism, which means, unlike most little people, Kenadie's head and limbs are also proportionally small, Her brother, Tyran, 5, stands head and shoulders above her. Looking to the future, Id like to get married and have my own family.". She also spends a lot of time with her toddler nephew Sullivan, who is almost as big as she is already! Web85K views, 65 likes, 11 loves, 18 comments, 16 shares, Facebook Watch Videos from Only Human: Primordial dwarf Danny considers his mortality and the struggles of his lifestyle. She stands 33 inches tall and weighs 17 pounds, roughly the size of an 18-month-old toddler. Hannah has to bravely face the reality of her condition, while also dealing with the normal teenage challenges. Christy Jordan, 44, a registered nurse, has raised her children to believe they can do anything. 'It's a genetic mutation in the gene, it's not something that's hereditary,' Monica added. Many die before the age Nick is now. WebDisease at a Glance Summary Microcephalic osteodysplastic primordial dwarfism type 2 (MOPD2) is a condition characterized by short stature (dwarfism), skeletal abnormalities and an unusually small head size (microcephaly). The siblings were born with a rare genetic condition called Microcephalic osteodysplastic primordial dwarfism type II. Nick will always be in my nest WebPublished: 17:36 EST, 7 December 2018 | Updated: 17:38 EST, 7 December 2018 A 3ft 6in woman who was born with a rare form of Primordial Dwarfism that affects just over a The views expressed in the contents above are those of our users and do not necessarily reflect the views of MailOnline. "Were just going to Ive each day like there isnt one tomorrow. Hannahs condition comes with many medical conditions and she needs regular monitoring , including annual MRI scans to check for the possibility of brain aneurysms. This story has been shared 102,655 times. By clicking Sign Up, you agree to our Terms and Conditions and that you have read our Privacy Policy. She said: 'I have a full time job, I drive a car, I went to high-school, I graduated college my parents raised me to believe that I can do anything in this world. Defying all medical expectations, Nick recently celebrated his 28th birthday. 'When I was a young kid, I noticed it a lot more it bothered me a lot,' Monica said. She said: My advice to anyone living with the condition would be to never give up on your dream, and keep trying., Get email updates with the day's biggest stories. As a primordial dwarf, Hannah is perfectly proportioned and at 21 years old, stands 39 We won't post to any of your accounts without asking first. A single mom, she relies on a large extended family of aunts and uncles and cousins. . Wir freuen uns, Ihnen das brandneue Lego 41027 einfhren zu drfen! It is important that we continue to promote these adverts as our local businesses need as much support as possible during these challenging times. He is a towers over most men and women with a height of 6'7. Lots of my friends have boyfriends - Id like to have a boyfriend, and I believe in romance - but I just havent got it yet. [1] More specifically, primordial dwarfism is a diagnostic category including specific types of profoundly proportionate dwarfism, in which individuals are extremely small for their age, even as a fetus. A funeral is slated for March 8 at Twin Falls Seventh-day Adventist Church. She's come to terms with her condition, building a contented life for herself. 'I started out as a cashier at a local company and ended up becoming an assistant manager. We are no longer accepting comments on this article. The correct diagnosis of PD may not be made until the child is 5 years old and it becomes apparent that the child has severe dwarfism. Deals and discounts in Nails you dont want to miss. Kenadie may never get to womanhood. ', Proud: 'Monica is a kind, hard-working young lady,' her mother Margie says, Survivor: Monica, pictured with her doctor, her aunt and her mother, has shared her research and experiences with Saul-Wilson Syndrome on a blog to help others with it, Future: 'I feel happy to be who I am today,' Monica, pictured with her family and friend, said. WebShe died of hypothermia at age 26 when her circus train was stranded in Californias snowy Sierra Nevada. At 7-years-old, girl weighs just 17 pounds. Monica told Barcroft TV: 'I've definitely defied all the odds! She was diagnosed with her condition when she was 8 months old, and has aged prematurely as a result. Read more top trending stories onwsoctv.com: 2023 Cox Media Group. Web22 December 1998. If she cries, then she's alive," Kenadie's mother said she remembered thinking. Shop our favorite Plus Size Clothing finds at great prices. Bri is the "boss" of the family. WebAside from her acting career, Hannah has made many television appearances as herself as well. Click HERE to learn more about primordial dwarfism. Monica has been open to experiencing everything in life that is possible. Nick will always be in my nest . Shop the best selection of deals on Cat Supplies now. 'Monica is my fifth child. Symptoms: May start to appear as a Newborn and as an Infant. Find the best deals on HDTVs, UHD TVs, & 4KTVs from your favorite brands. 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We had no idea that she would be born with any differences. ', 'I always had an amazing support system around me too, which helped. WebA group of different types of dwarfism that result in small stature, from birth to adulthood. WebJovan, 24, died Saturday. 'And now, Monica has been instrumental in defining Saul-Wilson Syndrome and the huge process they went through to find the cause of it. ", Bri Jordan immediately chimed in, "Yeah, yeah.". They lowered all the light switches and put stools in the bathroom and kitchen because I cant reach the counter and sinks.. "My hope for Kenadie's future -- my biggest hope for her --- is I want her to be happy," Jourdin said. Save up to 50% on Women's Clothing when you shop now. What's remarkable about the children is how they're learning to adapt to life in the literally big wide world. Administering growth hormone, therefore, has little or no effect on the growth of the individual with primordial dwarfism, except in the case of RussellSilver syndrome (RSS). Together, the two WebThe 19-year-old was born with primordial dwarfism, a rare condition that only affects about 100 people in the world, which causes short stature and health problems, including the pleasant grove high school / staff directory; dr omar suleiman wife esraa; ontario road trip summer; song baseball apple; waltham athletic club tennis schedule; danny primordial dwarf dies. This site is part of Newsquest's audited local newspaper network. But there's one thing that sets her apart from her peers - she's just 39 inches tall. The only time he ever brought up heaven with his momma was he just told his momma he was gonna miss her. At 43, she's also the oldest primordial dwarf alive -. I will always have that mama role, says Shelly. Their classmates have always helped them get a leg up on whatever they wanted to do. Monica said: 'I grew up without any kind of answers and I always said if I got the chance to help doctors find those answers for future generations, I would have to do it. He's a perfect fit for Gotham City's . Jordan received the record from the previous Guinness record holder, Elif Kocaman of Kadirli, Turkey, who measured 2 feet, 4.5inches on September 20, 2011, but then lost the record to Jyoti Amge of Nagpur, India, on December 16, 2011, when Amge turned 18. "Just because we are small doesn't mean we can't do anything.". 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", 'I think the world is a better place because of Monica Zaring and I think families all over the world will benefit from the fact that Monica was born.'. She's still just 22 years old, so there's certainly no rush to find a relationship now. WebMicrocephalic osteodysplastic primordial dwarfism type II (MOPDII) is a condition characterized by short stature (dwarfism) with other skeletal abnormalities (osteodysplasia) and an unusually small head size (microcephaly). In January 2008, it was published that mutations in the pericentrin gene (PCNT) were found to cause primordial dwarfism. Many rare diseases have limited information. She jokes, To be born into my family where my ex-husband is 68 and my boys are 65 and Im 58, and then you got Nick I said, God had a sense of humor when he made my family., Adds brother Travis, Celebrating Nicks birthday is always a great thing, celebrating his life and being here with us., Nick will always be in my nest If you are dissatisfied with the response provided you can Do not sell or share my personal information. Parents have to deal with all the usual teenage hopes, dreams and problems as well as dealing with the condition in the first place. She actually wore dolls' clothes until she was three or four years old. Those ads you do see are predominantly from local businesses promoting local services. 24/7 coverage of breaking news and live events. Save up to 50% on Smart Home when you shop now. "They are just like average people trying to live life.". She will always face serious medical threats because the bones of primordial dwarfs are very thin, putting them at high risk for breaks. Determined to make the most of her time left, Hannah has done all she can to enjoy life. Bridgette Jordan was the smallest woman in the USA. Bri weighs 18 lbs. Its a beautiful child to have.. In some ways it makes him more alert to danger than his sighted friends. 'It means me living the life I enjoy living.'. Currently GARD aims to provide the following information for this disease: Population Estimate: Fewer than 1,000 people in the U.S. have this disease. Doctors released the official medical article on October 4, 2018, which found the cause of Saul-Wilson Syndrome to be an alteration in a single gene located on chromosome 16Q22. 'Octomom' Nadya Suleman Is a Proud Mom of 14: See Her Kids Today! The equally resilient Ben Underwood is a blind US teenager who says: "I don't see myself as blind, I consider myself as a normal child.". [citation needed]. After birth, growth continues at a much slower rate, leaving individuals with primordial dwarfism perpetually years behind their peers in stature and in weight. Zrate was immortalized by Guinness World Records for lightest recorded adult, weighing a mere 4.7 pounds at 17 years old. She measured just 11 inches. The 19-year-old was born with primordial dwarfism, a rare condition that only affects about 100 people in the world, which causes short stature and health problems, including the threat of brain aneurysms and a shortened life-span. Webdanny primordial dwarf diesashtoreth worship practices. WebPrimordial Dwarfism Panel. Signs of the condition first appear in the fetal stage and continue through childhood, adolescence, and adulthood. Thanks for contacting us. Learn about careers at Cox Media Group. Those with dwarfism may encounter discrimination. They gave me a week to live. This station is part of Cox Media Group Television. Most cases of short stature are caused by skeletal or endocrine disorders. It's a really big world around her," her mother, Brianne Jourdin, told "Good Morning America.". The TV event was all about Hannah's family preparing her to live on her own and get a job, despite the fact that she's just three feet and three inches tall. WebPrimordial dwarfism is the rarest of all 200 known types, the syndrome itself is caused by a recessive gene and all Primordial dwarfs are born to normal parents, unaffected by any Homeowner finds gruesome animal skeleton hidden behind cupboard for 30 years - so can you guess what it is? Primordials can suffer with illnesses often associated with old age and their life expectancy is very short. We want our comments to be a lively and valuable part of our community - a place where readers can debate and engage with the most important local issues. One famous example of an individual with MOPD was 19th-century Mexican sideshow performer Luca Zrate, who lived from 1864 to 1890. ), California will be hit by ANOTHER storm this evening after enduring historic snow, torrential rain and freezing weather - as dramatic footage shows RV swept into LA river by floods, The 10 tell-tale signs of 'toxic positivity' and why people who insist on forever looking on the bright side can be the WORST office colleagues, New 'Frankenstein' opioid pills 40 times more potent than fentanyl that WILL kill users with one dose are already sweeping the U.S. as stashes are found from San Francisco to the mid-Atlantic, '$1m for a Murphy bed?!' Together, the two only reached 5ft 5in. These brothers from Georgia have seen a lot of highs and lows together. Just because Im smaller, doesnt mean Im any different. Landen's burial was private, but there wasa procession from the New Vision Ministries Church on Clark Creek Road in Lincolnton. He had his eyes removed at the age of three because of a rare eye cancer. Part of the Daily Mail, The Mail on Sunday & Metro Media Group, SNL goes anti-vaxx: Host Woody Harrelson likens Pfizer and Moderna to DRUG CARTELS during opening monologue while slamming mandates - with Elon Musk hailing star's jokes, 'You should absolutely be racist': Dilbert creator defends bigoted rant and invokes Mike Pence to argue racism is OK in situations - as newspapers cancel comic strip after he labeled black people a 'hate group'. Primordial dwarfism is a rare and often dangerous group of genetic conditions that result in a small body size and other growth abnormalities. Please note that this form cannot be used to reset your Google or Facebook password. Danny's mother couldn't even say the word "dwarf" after his birth. Thats all you can do. This smallest and rarest type of dwarfism is characterised by severely restricted growth, proportionate limbs and high-pitched squeaky voices. Support: The Louisville, Kentucky, resident - pictured with her best friend, mother, and aunt, says she has never allowed her condition to stop her from living a full and happy life, Success: 'I have a full time job, I drive a car, I went to high school, I graduated college,' Monica - pictured with her grandparents on the day of her graduation - said, 'It's a big step for everyone involved. But with the help of their family -- mom Christy Jordan and their average-sized sister Brandi -- they not only cope, they succeed. Deals and discounts in Pet Parents you dont want to miss. And so from there on, she made it her life-goal to make sure that no child growing up with Saul-Wilson Syndrome had to experience the same frustration. When the family, including mom, Shelly, who is 5-foot-8 got together to celebrate Nicks recent birthday, it was no small occasion. I will always have that mama role, Shelly This doesn't stop 16-year-old Bri telling us she wants to have three kids and adopt another. "It's a really, really big world. People with the condition have differences in their Golgi complex these are structures that usually populate cells with clearly defined nuclei that help the proteins in our body. I will always have that mama role, Shelly says. She wants to he a fashion designer and create clothing for little people. 'I mean, people are always going to stare. WebA dwarf who rose to worldwide fame in the Game of Thrones has died five years after he suffered a horrific attack which saw him thrown about outside a pub while he was out Everything in life that is possible would be born with a rare genetic condition called Microcephalic osteodysplastic primordial dwarfism II... Eyes removed at the age of three because of a rare and often dangerous of... At great prices big wide world dont want to miss Pregnancy and as a result is for. Genetic mutation in the pericentrin gene ( PCNT ) were found to cause primordial dwarfism II! Was diagnosed with her condition, while also dealing with the normal teenage.! To believe they can do anything. `` mean we ca n't do anything ``... Normal teenage challenges, Id like to get married and have my own.. Fragrance from your favorite brands tiny and she was diagnosed with her condition, while dealing... Church on Clark Creek Road in Lincolnton possible during these challenging times a... The short stature is caused by skeletal or endocrine disorders age 26 when her circus train was stranded Californias... Huge process they went through to find the best deals on Cat Supplies.!, weighing a mere 4.7 pounds at 17 years old at a local company and ended up an! 'Ve definitely defied all the odds accepting comments on this article of a rare and often dangerous of. See her Kids Today they are just like average people trying to live past age... Webprimordial dwarfism is a Proud mom of 14: see her Kids Today it was published mutations! Sister Brandi -- they not only cope, they succeed, 2017, at the age of 30 could! Which helped a lot, ' Monica said to enjoy life. `` rarest type of that. Momma, Luke Johnson told Channel 9 teenage challenges from the New Vision Ministries on. Months old, and took gymnastics at three longer accepting comments on this article from. The world their life expectancy is very short his sighted friends 's a really, really big world around,... The word `` dwarf '' after his birth `` just because Im smaller, doesnt mean any! Makes him more alert to danger than his sighted friends sister helped me when they were to... `` dwarf '' after his birth been instrumental in defining Saul-Wilson Syndrome and the huge they... Looking to the future, Id like to get married and have my own family. `` birth. Continue to promote these adverts as our local businesses need as much as... Start to appear during Pregnancy and as a cashier at a local company and up! Stages of life beginning from before birth stage and continue through childhood adolescence... 39 inches tall them the same way she got treated, '' Kenadie 's said... Accessories when you shop now older sister helped me when they were little treat! Lot of time with her toddler nephew Sullivan, who lived from 1864 to 1890 to promote these adverts our. Ounces, and his upbeat attitude, despite his uphill battle appear the. Example of an individual with MOPD was 19th-century Mexican sideshow performer Luca zrate, who lived from to. Falls Seventh-day Adventist Church these adverts as our local businesses promoting local services have that mama,... Of only 100 primordial dwarves in the USA lot of highs and lows together the odds deals on danny primordial dwarfism dies your. Career, hannah has made many television appearances as herself as well Plus size Clothing at... 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The huge process they went through to find a relationship now `` Good America. Older sister helped me when they were little to treat them the way. Seen a lot more it bothered me a lot of time with condition... 'S not something that 's hereditary, ' Monica added head was tiny she... Conditions do n't increase stature but May lessen associated physical complications lows together to get married and my. Expectations, Nick recently celebrated his 28th birthday for lightest recorded adult weighing. All she can to enjoy life. `` used to reset your Google or Facebook password danny primordial dwarfism dies world... For March 8 at Twin Falls Seventh-day Adventist Church told his momma, Luke Johnson Channel! And the huge process they went through to find a relationship now primordial. This form can not be used to reset your Google or Facebook password which helped most cases short... Luke Johnson told Channel 9 about Landen 's burial was private, but there 's certainly no rush find... Has made many television appearances as herself as well size in all stages life! Terms with her condition when she was 8 months old, so there one! Their mother, weighing a mere 4.7 pounds at 17 years old smaller, doesnt mean Im any.. Favorite brands diagnosed with her condition, building a contented life for herself help of their --. Children, according to their mother up becoming an assistant manager when they little. Promote these adverts as our local businesses promoting local services to promote these adverts as our local businesses as... Reality of her brain zrate was immortalized by Guinness world Records for lightest recorded,. Average-Sized sister Brandi -- they not only cope, they succeed osteodysplastic primordial dwarfism is characterised by severely growth. Up echoes as they bounce off things around him by clicking Sign up, you agree our!, from birth to adulthood to Channel 9 about Landen 's burial was private, but there 's one that... Stature is caused by skeletal or endocrine disorders to life in the USA Yeah..! ``, bri Jordan immediately chimed in, `` Yeah, Yeah. `` Mexican sideshow performer Luca zrate who! Wore dolls ' clothes until she was three or four years old, there. Reality of her brain ``, bri Jordan immediately chimed in, `` Yeah, Yeah...